Resources
SUDC Foundation
From the SUDC website:
The SUDC Foundation is dedicated to increasing the awareness of sudden unexpected deaths in childhood, and funding crucial research to better understand and prevent these tragedies. We are the only organization worldwide devoted solely to the needs of families and professionals touched by unexpected/unexplained deaths of children.
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The SUDC Foundation is a registered 501(c)(3), that provides no cost services to families and professionals affected by the sudden and unexpected death of a child 12 months and older. It is tasked with providing a centralized resource for information, support and advocacy. And it serves families and professionals affected by the tragedy of SUDC, and promotes awareness of SUDC in communities worldwide.
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Sudden Unexplained Death in Childhood (SUDC) is the sudden and unexpected death of a child 12 months and older which remains unexplained after a thorough case investigation is conducted. This must include; examination of the death scene, performance of a complete autopsy, and a review of the child and family's medical history. SUDC is a catergory of death that currently eludes our scientific understanding today. We do not know of any way to reduce the risk of SUDC. It is unpredictable and unpreventable at this time.
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The Staff and Board of Directors of The SUDC Foundation are here and ready to support those in need. Contact us today.
SADS Foundation
From the SADS website:
The mission of the SADS Foundation is to "save the lives and support the families of children and adults who are genetically predisposed to sudden death due to heart rhythm abnormalities." They provide patient and family support, health professional education, public awareness, and advocacy and research.
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Warning Signs of SADS
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family history of unexpected, unexplained sudden death under age 40
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fainting or seizure during exercise, excitement or startle
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consistent or unusual chest pain and/or shortness of breath during exercise.
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Click here to visit the SADS website: SADS.org
The Compassionate Friends
From the TCF website:
The mission of The Compassionate Friends: When a child dies, at any age, the family suffers intense pain and may feel hopeless and isolated. The Compassionate Friends provides highly personal comfort, hope, and support to every family experiencing the death of a son or a daughter, a brother or a sister, or a grandchild, and helps others better assist the grieving family.
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Each chapter, along with the supporting National Office, is committed to helping every bereaved parent, sibling, or grandparent who may walk through our doors or contact us.
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Around the world more than 30 countries have a Compassionate Friends presence, encircling the globe with support so desperately needed when the worst has happened.
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Click here to visit the TCF website.
Bo's Place, Houston
From the Bo's Place website:
Bo’s Place exists to offer support and community to those who have experienced the death of a loved one.
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A non-profit, free-of-charge bereavement center, Bo’s Place offers multiple grief support services for adults, children and families, and provides education and resources for those who assist people in grief.
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Bo’s Place operates on the belief that it is helpful and healing for grieving children and adults to share their stories, memories, experiences, thoughts and feelings with those who can understand their journey. Bo’s Place offers the only free on-going grief support program in the greater Houston area for children and their families.
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Click here to visit the Bo's Place website.
